Helpful Links

Patient Organizations


National Hemophilia Foundation (NHF)

Hemophilia Federation of America (HFA)

World Federation of Hemophilia (WFH)

The Coalition for Hemophilia B

Lady Bugs Foundation

Glanzmann’s Research Foundation (GRF)

Platelet Disorder Support Association (PDSA)

National Organization for Rare Disorders (NORD)

Government and Other Organizations


Centers for Disease Control and Prevention (CDC): Hemophilia

Health Resources and Services Administration (HRSA)

National Heart, Lung, and Blood Institute (NHLBI)

American Thrombosis and Hemostasis Network (ATHN)

European Hemophilia Consortium (EHC)

LA Kelley Communications, Inc.

Professional Organizations


Hemostasis and Thrombosis Research Society (HTRS)

The American Society of Pediatric Hematology/Oncology (ASPHO)

American Society of Hematology (ASH)

International Society on Thrombosis and Haemostasis (ISTH)