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Document Downloads

 

Disease State Information


Factor IX Use Aaround the World

WFH_FIX Around The World.pdf (239 KB)

Inhibitor Risk of FVIII Concentrates

MASAC_Inhibitor Risk of FVIII Con.pdf (229 KB)

Bleeding Symptoms of Rare Clotting Factor Deficiencies

WFH_RBD Symptoms Table.pdf (50 KB)

Guide to von Willebrand Disease

CDC_vWD in Brief.pdf (302 KB)

Factor XI Deficiency and its Management

WFH FXID Management.pdf (370 KB)

Guidelines and Recommendations


Lessons Learned and Future Directions (English)

CDC_UDC Lessons Learned Factsheet.pdf (272 KB)

Lessons Learned and Future Directions (Spanish)

CDC_UDC Lessons Learned_Spanish.pdf (998 KB)

Emergency Preparation


Surviving the Emergency Room

HFA_Surviving the ER.pdf (67 KB)

Fitness and Activities


Helpful Forms


Transitions


Guidelines for Growing From Birth-Age 4 (English)

CDC_Guidelines for Growing_From Birth-Age 4.pdf (9.9 MB)

Guidelines for Growing From Birth-Age 4 (Spanish)

CDC_Guidelines for Growing_From Birth-Age 4_Spanish.pdf (9.5 MB)

Guidelines for Growing Ages 5-8 (English)

CDC_Guidelines for Growing_ Ages 5-8.pdf (12.5 MB)

Guidelines for Growing Ages 9-12 (English)

CDC_Guidelines for Growing_Ages 9-12.pdf (5.7 MB)

Guidelines for Growing Ages 13-15 (English)

CDC_Guidelines for Growing_Ages 13-15.pdf (11.7 MB)

Guidelines for Growing Ages 16-18 (English)

CDC_Guidelines for Growing_Ages 16-18.pdf (5.1 MB)

For Caregivers and Parents


Questions to Ask Parent of a Child with Bleeding Disorder

SFL_Questions to Ask Parent of Child_Bleeding Disorder.pdf (275 KB)

Bullying in Children and Youth with Disabilities and Special Health Needs

StopBullying.gov_Disabilities.pdf (340 KB)

For Carriers


From Healthcare Professionals


Treatment Centers


Hemophilia Treatment Center Brochure

CDC_HTC Brochure.pdf (1.3 MB)

Treatment Support


Rest, Ice, Compress, Elevate (RICE) Treatment

SFL_RICE Treatment.pdf (322 KB)

Women's Health


Heavy Menstrual Bleeding Brochure (English)

CDC_Heavy Menstrual Bleeding Brochure.pdf (243 KB)