HCP Identify Unmet Needs in Glanzmann's
US Hematologists/Nurses Identified Unmet Needs in Diagnosis and Treatment of Glanzmann’s
ASH 2014 (San Francisco, December 6-9) A survey about unmet needs in patients with GT was disseminated to hematologists and nurses/nurse practitioners. According to data presented at the American Society of Hematology (ASH) 2014 Annual Meeting, 150 healthcare professionals (HCPs; 75 hematologists and 75 nurses/nurse practitioners) responded to the survey. Of the 150 responders, 46% were based in HTCs with the majority treating both adults and children. Their GT patients most commonly presented with gum/mouth bleeds (67%), bruising (66%), nose bleeds (61%), and/or abnormal menstrual periods (39%). It took an average of 18.4 months for patients to receive a hematologist referral since their first bleed and 22.1 months to get a confirmed diagnosis of GT. Additionally, when asked about medication utilization, in HCP’s experience, about 81% of the patients received platelets, 70% antifibrinolytics, 36% of the menstruating females received hormonal therapy and 75% of the patients received blood transfusion at some point in their life. Furthermore, when asked about pediatric patients, it was found that 89% had issues at school and 87% had issues with activities/sports. Most HCPs (65%) reported that children with GT had issues with peers and friends. It was also found that having a child with GT, impacted parents’ work (66%). In addition, for adult patients, GT impacted activities/participation in sports (82%) and issues with employment (62%). HCPs also reported that relationships were also affected because of GT in 42% of the patients. From HCP’s perspective, quality of life for patients with GT and their families could be improved with increased focus on diagnosis/treatment (45%) and education/awareness (29%).
This survey was sponsored by Novo Nordisk Inc.