Study shows there no difference between patients and siblings on social and emotional functioning, but decreased school-related function in patients with bleeding disorders

THSNA 2018 (San Diego, CA, March 7-10): A quality of life study among children and adolescents living with a bleeding disorder and their siblings presented at THSNA 2018 included 93 children & adolescents (47 with bleeding disorders and 43 siblings) between the ages of 6-17.

Lauer and colleagues showed that there was no significant difference between patients and siblings on social and emotional functioning. However, patients with bleeding disorders reported decreased school-related functioning, potentially highlighting the increased school absences related to disease management. Further, children with a bleeding disorder who experience bullying reported poorer social functioning than siblings who also experienced bullying but do not have a bleeding disorder.

Other differences were also evident. Individuals with bleeding disorders indicated the greatest change associated with activity restrictions and concern for injury; siblings reported increased illness-related knowledge and differing life perspectives.

Approximately 20% of the children and adolescents in each group indicated that they did not experience any differences associated with the bleeding disorder. These findings demonstrate resiliency and identify specific areas of difficulty related to school and social functioning among youth with bleeding disorders.