UCSF HTC Survey on Intimacy Issues

THSNA 2016 (Chicago, April 14-16): The treatment team at UCSF’s HTC presented results of a survey of their adults at the Thrombosis and Hemostasis Summit of North America (THSNA) in a poster. They sent out 97 surveys to adults (age 18+ years) and received 23 back (23.7%) of which 20 positively responded; average age of respondents was 49, 2/3 (65%) had severe hemophilia, and many had HIV (45%) or Hepatitis C (25%). Eight respondents (40%) said having a bleeding disorder negatively affected their sexual relationship with their partner, some were neutral, and only 1 in 5 (20%) said it did not affect it. The authors concluded that their study highlights men with hemophilia have experienced bleeds related to sexual activity, believe that it affects their sex life, and are interested in receiving information about sexual health from their providers. Further, more studies in this area are needed.