Meetings & Events

Bleeding and Treatment in Factor XIII Deficiency

ASH 2014 (San Francisco, December 6-9) The PRO-RBDD study is a global initiative focused in part on assessment of patients with fibrinogen and factor XIII deficiency over 3 years. To date, 15 sites submitted 109 cases of factor XIII deficiency.


Glanzmann’s Impacts Patients & Caregivers

ASH 2014 (San Francisco, December 6-9) To assess the impact Glanzmann’s Thrombasthenia (GT) has on patients and caregivers, adults with GT and parents of children with GT were requested to respond to an internet survey.


HCP Identify Unmet Needs in Glanzmann's

ASH 2014 (San Francisco, December 6-9) A survey about unmet needs in patients with GT was disseminated to hematologists and nurses/nurse practitioners. Out of 150 healthcare professionals who responded, 46% were based in HTCs