Meetings & Events

Bleeding and Treatment in Factor XIII Deficiency

ASH 2014 (San Francisco, December 6-9) The PRO-RBDD study is a global initiative focused in part on assessment of patients with fibrinogen and factor XIII deficiency over 3 years. To date, 15 sites submitted 109 cases of factor XIII deficiency.

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Glanzmann’s Impacts Patients & Caregivers

ASH 2014 (San Francisco, December 6-9) To assess the impact Glanzmann’s Thrombasthenia (GT) has on patients and caregivers, adults with GT and parents of children with GT were requested to respond to an internet survey.

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HCP Identify Unmet Needs in Glanzmann's

ASH 2014 (San Francisco, December 6-9) A survey about unmet needs in patients with GT was disseminated to hematologists and nurses/nurse practitioners. Out of 150 healthcare professionals who responded, 46% were based in HTCs

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