Meetings & Events

Characteristics of Factor IX Deficiency

ISTH 2015 (Toronto, June 20-25) Some studies in the past have reported that Hemophilia B patients use lower amounts of factor, use prophylaxis less often, have less hospital admissions, and less joint disease

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Impact of Pain and Functional Impairment In US Adult People with Hemophilia (PWH)

ISTH 2015 (Toronto, June 20-25) Pain and its impact on daily activities and quality of life were noted in each patient-reported outcome with 43.3% reporting having experienced moderate/severe/extreme pain or discomfort.

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Children with Hemophilia (CWH) in the United States

ISTH 2015 (Toronto, June 20-25) A pilot test suggests caregiver burden for hemophilia is greater among those whose child ever had inhibitors.

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The INSIGHT (International Study on Etiology of Inhibitors in Patients with a Moderate or Mild Form of Hemophilia A, Influences of Immuno-Genetic & Hemophilia Treatment Factor) Study

ISTH 2015 (Toronto, June 20-25) The INSIGHT study showed that blood group O was a predictor of factor VIII levels and was associated with higher risk of bleeding in people with hemophilia complications.

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The Effect of Factor Activity Levels and Bleeding Characteristics

ISTH 2015 (Toronto, June 20-25) Analysis of data from US patients with mild and moderate hemophilia suggests that bleeding can occur with baseline factor activity levels, but may be slightly more common in mild/moderate hemophilia A than B.

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Overview of Rare Bleeding Disorders

ISTH 2015 (Toronto, June 20-25) Life-threatening bleeding can occur in patients with FVII and FXIII deficiency, including bleeding into the head (intracranial hemorrhage or ICH).

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