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Helpful Links

Patient Organizations

National Hemophilia Foundation (NHF)

http://www.hemophilia.org

Hemophilia Federation of America (HFA)

http://www.hemophiliafed.org/

World Federation of Hemophilia (WFH)

http://www.wfh.org/en/page.aspx?pid=492

The Coalition for Hemophilia B

http://coalitionforhemophiliab.org/

Lady Bugs Foundation

http://www.ladybugsfoundation.org/Home.php

Glanzmann’s Research Foundation (GRF)

http://glanzmanns.com

Platelet Disorder Support Association (PDSA)

http://pdsa.org

National Organization for Rare Disorders (NORD)

http://rarediseases.org

Government and Other Organizations

Centers for Disease Control and Prevention (CDC): Hemophilia

http://www.cdc.gov/ncbddd/hemophilia/aboutus.html

Health Resources and Services Administration (HRSA)

http://mchb.hrsa.gov/programs/hemophilia/

National Heart, Lung, and Blood Institute (NHLBI)

http://www.nhlbi.nih.gov/health/health-topics/topics/hemophilia/

American Thrombosis and Hemostasis Network (ATHN)

http://www.athn.org/

European Hemophilia Consortium (EHC)

http://www.ehc.eu/

LA Kelley Communications, Inc.

http://kelleycom.com

Professional Organizations

Hemostasis and Thrombosis Research Society (HTRS)

https://www.htrs.org/

The American Society of Pediatric Hematology/Oncology (ASPHO)

http://aspho.org/

American Society of Hematology (ASH)

http://www.hematology.org/Patients/

International Society on Thrombosis and Haemostasis (ISTH)

https://www.isth.org