One in a Million Rare Bleeding Disorders
NHF (Orlando, July 21-23): Dr. Erin Cockrell led a session for patients and families with rare bleeding disorders
NHF (Orlando, July 21-23): Dr. Erin Cockrell from Tampa led a very interactive session at the National Hemophilia Foundation’s annual meeting for patients and families with rare bleeding disorders. The session triggered many questions and comments from the audience. One theme discussed was the patients with delayed diagnosis or lack of diagnosis. Another area of discussion was around lack of specific treatment options for particular rare disorders, or insurance pressure or denials for non-specific disorders, such as unspecified platelet function disorders. Participants verbalized the need for additional research in rare bleeding disorders by pharmaceutical companies. Dr Cockrell encouraged the audience to participate in ATHN database.