Information about rare bleeding disorders. All in one place.

Living with hemophilia and other rare bleeding disorders requires an in-depth understanding of all things blood-related: clotting factors, platelets, and more. Novo Nordisk created this website to help you in your search for the most recent comprehensive and breaking news you need.

Select a bleeding disorder to learn more:

Bleeding disorder news and events

American Society of Hematology Annual Meeting and Exposition

December 3-6, 2016; San Diego, CA

American Academy of Managed Care Pharmacy

March 27 – 30, 2017, Denver, CO

Hemostasis and Thrombosis Research Society

April 6 – 8, 2017; Scottsdale, AZ

Hemophilia Federation of America

April 6 – 9, 2017; Providence, RI

Physical Activity in Adults with Hemophilic Arthropathy

Adult patients with hemophilia on prophylaxis in Spain were able to walk about 10,000 steps a day without risk of bleeding.

Impact of Obesity on Dosing of Hemophilia Products

Obesity may impact factor dosing in patients with hemophilia.

Reports of Joint Outcomes in Hemophilia Patients

Joint Outcomes in United States (US) Hemophilia Patients: a report of the Community Counts Registry

Understanding FXIII Deficiencies

Women with congenital FXIII deficiency need to be carefully monitored during pregnancy.

B-HERO-S Study Highlights Psychosocial Issues in Men and Women with Hemophilia B

B-HERO-S Study reports on the impact of Hemophilia B on men and women with Hemophilia B on education, work and activities.

B-HERO-S Study Highlights Psychosocial Issues in Boys and Girls with Mild-Severe Hemophilia B

B-HERO-S Study reports on the psychosocial impact of Hemophilia B on affected boys and girls and their families.

What are rare bleeding disorders?

Here is a fundamental primer for you, your family, or a friend who might be looking for the basics about rare bleeding disorders. Learn how the human body normaly stops bleeding, and how bleeding disorders interfere with the process.

 

Bleeding Disorder Basics 

 

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