Information about rare bleeding disorders. All in one place.

Living with hemophilia and other rare bleeding disorders requires an in-depth understanding of all things blood-related: clotting factors, platelets, and more. Novo Nordisk created this website to help you in your search for the most recent comprehensive and breaking news you need.

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Bleeding disorder news and events

Thrombosis and Hemostasis Societies of North America

The Thrombosis & Hemostasis Societies of North America (THSNA) will be held on March 8-10, 2018 in San Diego, CA.

American Academy of Managed Care Pharmacy

April 23-26, 2018, Boston, MA

American Society of Pediatric Hematology/Oncology

The American Society of Pediatric Hematology/Oncology (ASPHO) will be held May 2-5, 2018 in Pittsburgh, PA.

PT experts quantify the risk of bleeding associated with a specific activity and factors to decrease risk

Results from the Activity-Intensity-Risk (AIR) Survey and Consensus Meeting of US Physical Therapists were presented in a poster at the annual National Hemophilia Foundation (NHF) meeting.

Prevalence of obese or at risk individuals in the hemophilia population is now more than 50%

Obesity in the hemophilia community has several negative effects

Gross motor testing is recommended as part of the annual physical therapy evaluation for patients with hemophilia

In a poster presented at the annual NHF meeting, the authors looked at whether or not gross motor delays may be missed during the annual physical therapy evaluation of young boys with hemophilia.

Study explores why only some women seek evaluation regarding their hemophilia carrier status

Individuals with a family history of severe hemophilia demonstrated higher levels of knowledge for hemophilia inheritance and bleeding risks to carriers.

A large US insurance claims database suggests a delay in diagnosis and therapeutic intervention in Women and Girls with Hemophilia (WGH)

The median age of WGH diagnosis and factor therapy initiation was 35 and 37 years old

Variation in symptoms between hemophilia A carriers during labor and after delivery can lead to different clinical presentations requiring individualized management

There needs to be increased awareness about the challenges Hemophilia carriers A can potentially experience during labor and after delivery

What are rare bleeding disorders?

Here is a fundamental primer for you, your family, or a friend who might be looking for the basics about rare bleeding disorders. Learn how the human body normaly stops bleeding, and how bleeding disorders interfere with the process.

 

Bleeding Disorder Basics 

 

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