Information about rare bleeding disorders. All in one place.

Living with hemophilia and other rare bleeding disorders requires an in-depth understanding of all things blood-related: clotting factors, platelets, and more. Novo Nordisk created this website to help you in your search for the most recent comprehensive and breaking news you need.

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Bleeding disorder news and events

Coalition for Hemophilia B

2019 Annual Symposium

American Society of Pediatric Hematology/Oncology

May 1-4, 2019. New Orleans, LA

Hemostasis & Thrombosis Research Society

May 9-11, 2019. New Orleans, LA

Sexual Health in Patients with Hemophilia; The Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study

Older age, joint bleeding and joint status are related to poor sexual health in persons with Hemophilia

Burden of Comorbid Diseases in Patients with Hemophilia:

Survey shows that persons with hemophilia more frequently report hypertension and gingivitis

Understanding Treatment and Care Utilization & Perceptions of Females with Hemophilia A or B in the CHOICE Project

Survey shows Females with Hemophilia (FWH) aged 18-34 years have lowest satifaction with their hemophilia care

Assessment of Health Literacy & Numeracy in Adolescences with Hemophilia A & B may indicate the need for formal testing

Pilot study findings could impact how HTCs should educate patients on disease interventions

Appropriate disease and treatment knowledge is important in preparing adolescents with hemophilia for transition to adult care.

Improved tailored communication between HTC staff and patients fosters medical independence

Study shows there no difference between patients and siblings on social and emotional functioning, but decreased school-related function in patients with bleeding disorders

Findings demonstrate resiliency and identify specific areas of difficulty related to school and social functioning among youth with bleeding disorders.

What are rare bleeding disorders?

Here is a fundamental primer for you, your family, or a friend who might be looking for the basics about rare bleeding disorders. Learn how the human body normaly stops bleeding, and how bleeding disorders interfere with the process.

 

Bleeding Disorder Basics 

 

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